CARE.DATA - Important Information and Guide for Patients
The NHS is changing and services are being restructured. These Reforms will impact upon the way that clinical data is collected, shared and analysed. Under the powers of the Health and Social Care Act 2012 (HSCA), the Health and Social Care Information Centre (HSCIC) can, under certain circumstances, require Personal Confidential Data (PCD) from GP Practices without seeking patient consent. One of the first initiatives using these new powers is the Care.Data Service. This services has been commissioning by the NHS England and will be delivered by the HSCIC.
Care.Data will make increased use of information from medical records with the intention of improving healthcare, for example by ensuring that timely and accurate data are made available to NHS commissioners and providers so that they can better design integrated services for patients. In the future, approved researchers may also benefit. The HSCIC will link Personal Care Data extracted from GP computer systems with Personal Care Data from other health and social care settings.
The dataset to be extracted from GP systems for the care.data service includes personal confidential data such as Referrals, all NHS prescriptions and other clinical data. Identifiers (DoB, Postcode, NHS Number and Gender) are required. The extract will be on a monthly basis, using General Practice Extraction Service (GPES).
If any patient on receiving this information does not want their information that identifies them to be shared outside your GP Practice, you can ask your Practice to make a note of this in your Medical Record. This is called an objection. An objection will prevent your confidential information being used other than where there are exceptional circumstances or where the law allows your information to be shared.