Your NHS Data Matters
Find out why your data matters
How your data is used:
- Overview
- Benefits of data sharing
- How your data is used
- Manage your choice
The NHS collects health and care data from all NHS organisations, trusts and local authorities. Data is also collected from private organisations, such as private hospitals providing NHS funded care. Research bodies and organisations can request access to this data.
More information on health and care records.
Research bodies and organisations include:
- university researchers
- hospital researchers
- medical royal colleges
- pharmaceutical companies researching new treatments
Most of the time, we use anonymised data for research and planning. So your confidential patient information isn’t always needed. If you do opt out, data that does not identify you may still be used.
Who can’t use your data
There are very strict rules on how your data can and cannot be used, and you have clear data rights.
Access to confidential patient information will not be given for:
- marketing purposes
- insurance purposes
(unless you specifically request this)
How your data is protected
Protection of your confidential patient information is taken very seriously and is looked after in accordance with good practice and the law.
Every organisation that provides health and care services will take every step to:
- ensure data remains secure
- use anonymised data whenever possible
- use confidential patient information to benefit health and care
- not use confidential patient information for marketing or insurance purposes (unless you specifically request this)
- make it clear why and how data is being used
- respect your decision if you decide to opt out
- only use information about you where allowed by the law
All NHS organisations must provide information on the type of data they collect and how it is used. Data release registers are published by NHS Digital and Public Health England, showing records of the data they have shared with other organisations.
NHS Digital Data Release Register.
Public Health England data release register.
Summary Care Record
Why do I need a Summary Care Record?
Storing information in one place makes it easier for healthcare staff to treat you in an emergency, or when your GP practice is closed.
This information could make a difference to how a doctor decides to care for you, for example which medicines they choose to prescribe for you.
Who can see it?
Only healthcare staff involved in your care can see your Summary Care Record.
How do I know if I have one?
Over half of the population of England now have a Summary Care Record. You can find out whether Summary Care Records have come to your area by looking at our interactive map or by asking your GP.
Do I have to have one?
No, it is not compulsory. If you choose to opt out of the scheme, then you will need to complete a form and bring it along to the surgery. You can use the form at the foot of this page.